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Session 4

Parents and Carers – Avoidant Restrictive Food Intake Disorder

Session 4

Expectation and resources

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What to expect

Long term treatment as it takes time to develop a new skill, need a lot of support from the parents/carers/family

VERY important to discuss parent’s expectations and what success looks like for them!!!

  • There is no right/wrong OR specific steps to get “there”…. Each child will work in a different way

  • Each step can take days, months…and sometimes years…. They may change their minds during the process

  • Depending on their presentation, they can “jump” stages (i.e. from square bread to bread and cheese) OR they will need more steps – always ask how they feel about it and explain what to expect

  • The new food should not be expected to be eaten straight away, sometimes is just about exposure

  • Think about the 32 steps to eating

Expectations

We all know that as
parents, we would like to
eat a good variety of
foods and eat in
restaurants but the
reality is that
sometimes this will take a
long time to happen

So adjusting our
expectations and
thinking about how
important the “baby
steps” are is
essential

We do have successes but we also have “good enough”

So have a think about what success looks like…

How to manage others expectations
including extended family

1

We know that the pressures from the
extended family and a close circle
of friends has a huge impact on how
parents feel

2

Involve extended family members as much as you can, giving them a role to play in supporting the child – exposure and removing pressure

3

Acknowledge that they may not be able to understand but accepting that the child needs support is the main thing

What does success look like

Saying "I am hungry"

Trying something new even if just once

Not having conflict at the dining table

Going to a restaurant

Sitting at the dining table with the family

Not reducing their accepted foods

Weight gain

Height gain

Eating at school/sitting in the dining room with peers

Reduction in hospital admissions

Sitting in the same room as others eating

We encourage you to create your list of successes in the notes section below!

Hunger Chart

  • 0
  • 2
  • 4
  • 6
  • 8
  • 9
  • 10
really hungry
really full
Monday Tuesday Wednesday Thursday Friday Saturday Sunday
Early Snack
Breakfast
Mid morning
snack
Lunch
Pudding
Afternoon snack
Dinner
Pudding
Evening snack
Download this table

My Reward Chart

Task

SUN MON TUE WED THUR FRI SAT

WEEKLY GOALS

DONE

Download and print out the reward chart!

Download chart
Helpful Resources

References for material used in this module

Content

Bedfordshire and Luton Mental Health and Wellbeing Services

https://www.elft.nhs.uk/services/bedfordshire-and-luton-mental-health-and-wellbeing-services-0
Visual graphics
  • Adobe Stock
  • Shutterstock
  • Freepik Vector
Supporting videos

Bedfordshire and Luton Mental Health and Wellbeing Services

https://www.elft.nhs.uk/services/bedfordshire-and-luton-mental-health-and-wellbeing-services-0

Bedfordshire and Luton Mental Health and Wellbeing Services

https://www.elft.nhs.uk/services/bedfordshire-and-luton-mental-health-and-wellbeing-services-0

Bedfordshire and Luton Mental Health and Wellbeing Services

https://www.elft.nhs.uk/services/bedfordshire-and-luton-mental-health-and-wellbeing-services-0

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